These are my feet. I actually consider them my best feature. I take excellent care of them because they are also my livelihood. I am a nurse, and if I can’t walk I can’t work. They carry me through my day without complaint. They have run races and chased toddlers. They have paced the floor worrying. They love to walk on the beach, and I hope to get them there again soon.
These are my hands. I do like them. They can’t draw or play the piano, but they can cook, they can write, and they can give comfort. You’ll find them most often tapping on a keyboard or rubbing a furry belly.
These are my eyes. I like them because they’re expressive. I couldn’t lie if I wanted to because my eyes evidently always tell their own story. Especially lately when friends and family ask, “How are you?” And I answer, “Fine, thanks.” To which they reply, “No, you’re not. I can see it in your eyes!” My eyes have recently required me to get my first pair of bifocals, but I still love them. They let me read, which is something I do CONSTANTLY. They show me my beautiful family and friends and the spectacular offerings of nature in Kentucky. And they let me Tweet, which I love, love, love!
Why did I choose my feet, hands, and eyes? Probably not for the reason you expect. My friend Kim was diagnosed earlier this summer with Oposoclonus Myoclonus Ataxia Syndrome (OMA/OMS). One day she was running several miles like she does routinely, the next day she couldn’t walk. Very quickly she couldn’t see and couldn’t move at all without violent tremors. Her hands, feet, and eyes were no longer her own to control. She’s fighting back, and has made amazing progress already. Within hours of getting her diagnosis Kim decided she wanted to start a blog about OMA/OMS to help other patients with this rare disorder and their families. She had never blogged before, had rarely even READ a blog. But she did it, and has actually typed her last two posts completely on her own. This syndrome affects only ONE IN TEN MILLION people, and a vast majority of those are young children. It is often misdiagnosed, which is particularly tragic since early diagnosis and treatment are essential to an optimal recovery. Please take a look at her blog and share it so that hopefully we can raise awareness of this disease and help patients be diagnosed and treated more quickly.